Rare Disease Day 2015

For Rare Disease Day 2015, events will be held at the Utah State Capitol and the University of Utah on February 27-28, 2015.  There are many rare diseases out there so Rare Disease Day is a good opportunity to show your support to all of the mothers, fathers, siblings, and friends who may be dealing with a rare disease or who has someone close to them who is.  The following are events for Rare Disease Day here in Utah:

Utah Rare Disease Day State House Event
Friday, February 27, 2015
State Capitol Building
350 North State Street, Salt Lake City, UT 84114
If you would like to register for this event, sign-up here.

Utah Rare Disease Day Symposium
Saturday, February 28, 2015 from 12:00 PM to 5:00 PM (MST)
Salt Lake City, UT
sign-up here.

Event: Utah Jazz Game – Rare National Anthem
Organization: Utah Jazz & Run4Rare
Contact Name: Cristina Might
Email: gina@utahrare.org
Event Address: Energy Solutions Arena, Salt Lake City, Utah
Event Date: 2/23/2015
Description: A group of rare children will be on court in recognition of Rare Disease Day in Utah.

Event: Rare Angels Photo Exhibit
Organization: Utah Rare & Aware of Angels
Contact Name: Cristina Might
Email: cristina@utahrare.org
Event Address: Utah State Capitol
Event Date: 2/27/2015
Description A photography exhibit by artist Season Atwater showcasing children and families with rare diseases from Utah.




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