Rare Disease Day 2015

For Rare Disease Day 2015, events will be held at the Utah State Capitol and the University of Utah on February 27-28, 2015.  There are many rare diseases out there so Rare Disease Day is a good opportunity to show your support to all of the mothers, fathers, siblings, and friends who may be dealing with a rare disease or who has someone close to them who is.  The following are events for Rare Disease Day here in Utah:

Utah Rare Disease Day State House Event
Friday, February 27, 2015
State Capitol Building
350 North State Street, Salt Lake City, UT 84114
3:00pm-5:00pm
If you would like to register for this event, sign-up here.

Utah Rare Disease Day Symposium
Saturday, February 28, 2015 from 12:00 PM to 5:00 PM (MST)
Salt Lake City, UT
sign-up here.

Event: Utah Jazz Game – Rare National Anthem
Organization: Utah Jazz & Run4Rare
Contact Name: Cristina Might
Email: gina@utahrare.org
Event Address: Energy Solutions Arena, Salt Lake City, Utah
Event Date: 2/23/2015
Description: A group of rare children will be on court in recognition of Rare Disease Day in Utah.

Event: Rare Angels Photo Exhibit
Organization: Utah Rare & Aware of Angels
Contact Name: Cristina Might
Email: cristina@utahrare.org
Event Address: Utah State Capitol
Event Date: 2/27/2015
Description A photography exhibit by artist Season Atwater showcasing children and families with rare diseases from Utah.

 

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